Update: Episode 62 (9/21/18)

Title of today’s episode: “Not the best of news”

I guess there’s no way to sugar coat this – my leukemia has returned…again!  My last few blood tests have indicated blasts (leukemia cells) in my blood.  We did another test of percentage of blood – mine vs. Connor – and showed that since end of July, it had gone from 9% me / 91% Connor to about 50% / 50% between the two of us.

Right now, the plan is to do another round of same chemo we did in August and September the first week of October.  In the interim, our oncologist is reaching out to other facilities for other treatments, and we’ve contacted the doctor we talked with in Seattle to do the same.  I will be going to Hopkins once or twice a week for red blood and platelets whichever is needed.

The good news (besides avoiding ambulance rides and hospital stays) is I am feeling pretty good, still able to walk up to 1 mile per day, and now able to enjoy a glass of wine every so often.  The fevers have not returned, so very thankful for that.

So, we do what we need to do, and are hopeful the doctor’s research provide some possible course of action or a miracle.  We are truly taking it a day at a time, thankful for each one and making the best of it.  Terri’s still my lifesaver and we celebrated her birthday yesterday. Happy Birthday my darling!

 

Thanks again for all your thoughts and prayers and as always, treasure your loved ones and live each day to the fullest.

God’s Blessings,

Paul and Terri

Terri’s PS:  I think both of us are working to get our feet under us for what the next few weeks/months hold and appreciate everyone’s kindnesses.  Thank you.  We are participating again in this year’s Light the Night walk in Reston on October 14th and will be surrounded by a bunch of people who are in the same spot we are and many who have beat this bastard!  If anyone wants to come out and walk with us, it would be awesome, or donate to the team “Dudley’s Do Righters.”  Donations go to Leukemia and Lymphoma Society (LLS) who are one of the mainstays to providing money for research for new therapies and currently have a Beat AML campaign going (which if they are lightning fast might help Paul, but…) . Just go here to learn more.  https://pages.LightTheNight.org/nca/Reston18/dudleysdorighters

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